Monday, January 18, 2010

Eating well....All of us! ;)


Mr. Jack is feeling better and slowly starting to eat his regular food again. As you can see, Puffs are a treat he remembered to be on his "favorites list". However, he has not remembered squash, sweet potatoes, green beans and rice cereal to be on that list. Stefanie and I have allowed the picky eating since the surgery, but that will more than likely end today! Having Jack follow a schedule was hard enough the first time around so we do not want to drift further away than necessary. His schedule will become more rigid as time goes on until we are back to normal.

As for Stefanie and I, we are eating a bit out of whack as well, but in a very good way! We have been blessed with so many friends and family wanting to help with housework, running errands, grocery shopping and delivering meals. Unbelievable acts of generosity that we only hope to have the opportunity to repay in the future! (And we don't mind eating like kings for a while too!)

Jack condition, craniosynostosis, was at first going to be a relatively routine surgery for Dr. Singhal. Upon the first incision he realized that Jack's condition has advanced rapidly and become "progressive". This was a term that was unfamiliar to us in relation to craniosynostosis and Total Calvarial Expansion and Reshaping (the medical term for Jack's surgery). Stefanie searched "progressive craniosynostosis" and discovered that Jack's condition occurs in <.00002% (approx 1 out of 50,000) of babies born today. With that kind of luck Jack needs to play the lottery as soon as possible! He was experiencing elevated intracranial pressure and the surgery couldn't have come sooner. Dr. Singhal mentioned that his brain welcomed the newly found real estate by expanding as the suture lines were opened. He described it like the brain "mushroomed" because it had already filled the available space inside his cranium. We are very thankful for the findings of Dr. Miller, our pediatrician, and the abilities and experience of Dr. Singhal, the surgeon for identifying and correcting our baby's little noggin! Enough of the medical stuff, we are going to eat some of the fabulous meals that our friends and family prepared for us.

~Cory & Stefanie

3 Comments:

Blogger shannon said...

jack looks wonderful!!! i am so glad that you are eating like kings (especially after what toni made you...i was a bit jealous)! i know that you have lots of help, but if you need anything let us know.

January 19, 2010 at 9:44 PM  
Anonymous Anonymous said...

Glad to see the boy is home and enjoying the "in-go" and "out-flow" -- hope you are also enjoying being home. We are thinking about you.

Steve & Carrie

January 20, 2010 at 8:47 AM  
Anonymous Anonymous said...

Your story is amazing. God's timing is so incredible. We are praising and thanking Him and continuing to pray for the completion of the miracle. Holler if you need anything. We are just a stone's throw away. Love, Bruce and Toni

January 21, 2010 at 5:50 PM  

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